The parents of Jaxon “Strong” Buell have posted this adorable video of the one-year-old playing.
Jaxon was born with a rare neural tube condition called microhydranencephaly.
The condition has left him without most of his skull.
Doctors in the US warned his parents Brandon and Brittany Buell to prepare for the worst.
And they did. They prepared for stillbirth, for neonatal death, for permanent disability and lifelong care. What they didn’t prepare for was Jaxon’s incredible bravery and strength of will.
One year from his birth – and one year longer than the doctors expected him to live – Jaxon is thriving. In the care of his doting parents, Jaxon lives a full, happy and precious life.
To celebrate his son’s birthday, and to reflect on the hardships they have overcome, Jaxon’s father, Brandon, has penned this heartfelt letter to his baby boy.
Speaking to The Weekly Online, burns survivor and motivational speaker, Turia Pitt shared the advice she wold have for tiny Jaxon, growing up.
“Hold you head high and be proud of the awesome person that you are! You’re unique and you’re special and NO ONE can take that away from you. Life is more about what you have then what you don’t have.
“Try to appreciate everything that life has given you – your family, your friends, your intelligence, your pets. Finally, surround yourself with genuine and kind people,” said Turia.
