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My daughter had up to 50 seizures a day

My daughter had up to 50 seizures a day

As parents, the hardest thing Lee and Amy have ever done is watch their five-month-old daughter go through a complex, rare and life-changing surgery.

“My wife Amy and I knew that the operation was highly dangerous, and there was a possibility that we would lose her,” Lee said.

“We were worried that after the surgery she wouldn’t know who we were, or that she wouldn’t be able to smile or communicate with us. But this extraordinary operation was our only chance to make Ali a happy and healthy little girl.”

Now three-years-old, Ali is just one of the miracle stories to come out of the Sydney Children’s Hospital, Randwick.

Ali was born with severe epilepsy and from day one she suffered regular seizures. As she got older, the seizures got worse and occurred more frequently. Within a few months, Ali was having up to 50 seizures a day.

Ali’s life-changing surgery — a functional hemispherectomy, which is only performed in the most extreme cases of epilepsy — saw one-third of her brain removed.

Luckily, Ali’s age played a huge role in her recovery. Following the operation, her brain was able to rebuild itself, finding new paths for brain waves to control her speech and movement.

The remaining side of her brain learned to look after the tasks that had previously been controlled by the section that was removed.

Due to Ali’s remarkable recovery, doctors say that by the time she is five years old, her brain function will be the same as any other child her age. “Thanks to the surgery, she’s right on track. We’re watching her grow more and more every day,” Amy said.

Amazingly, in the two and half years since her operation, Ali has not had a single seizure.

Although there is a small possibility of having a seizure at some point in the future, Ali now lives a normal life.

“She’s amazing. She’s running and jumping, and her vocabulary is getting better. Her coordination and vision on her right side will always be affected, but it’s a small price to pay in exchange for Ali’s life. She is a very cheeky girl, who exceeds our expectations every day. We simply haven’t looked back,” Amy said.

Ali is one of the faces of the Sydney Children’s Hospital’s Gold Week telethon, which will take place on Monday, June 11, to raise money for the hospital. Make your donation now!

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Motherhood turns women into Facebook addicts

Motherhood turns women into Facebook addicts

Becoming a mother turns women in compulsive Facebook users, a new study has found.

Researchers from Ohio State University interviewed 154 mothers and 150 fathers and found that 44 percent of mothers reported using Facebook more after giving birth than before.

Around 29 percent estimated they used the social networking site the same as before they gave birth, while 27 percent said they used it less.

Related: Is Facebook ruining your relationship?

For anyone who is friends with a new mother on Facebook, it will come as no surprise to hear that most of them spend a lot of time online posting photos of their new babies.

The study found that 93 percent of mothers used the site to upload and share images of their new addition.

New fathers, on the other hand, showed far less pronounced changes in their Facebook habits, with 31 percent saying their usage had increased, 51 percent reporting it had stayed the same and 19 percent saying it had decreased.

The results surprised the researcher, who expected new mothers to report they had no time for things like Facebook.

“Given all the stress that new parents are under and everything they have to manage, it wouldn’t have been surprising if we had found a decrease in Facebook usage, but that’s not what we found,” study co-author Sarah Schoppe-Sullivan said in a media release.

Related: Facebook to lift ban on under-13s

Study leader Mitchell Bartholomew thinks new mothers might be using the social networking site as a source of support at a very stressful time.

“These mothers may be taking time off from work, and may be far from family, so this network they created for themselves on Facebook can be very valuable in helping them cope,” he said.

This study was published in the journal Family Relations.

Your say: Did your Facebook habits change when you had a child?

Video: Facebook depression

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My four-year-old son had a heart attack

My son, four, had a heart attack

William suffered a cardiac arrest aged just four.

Nicci will never forget the day she walked into her four-year-old son’s bedroom to find him turning blue on the floor.

Despite his tender age, William had suffered a cardiac arrest. Nicci called paramedics and performed CPR for six agonising minutes before they arrived to revive him.

As Nicci looked on, horror-struck, paramedics shocked William’s tiny heart back into a normal rhythm before rushing him to the emergency department at the Sydney Children’s Hospital, Randwick.

William was put into an induced coma and given a ventilator to help him breathe. Although his condition had stabilised, doctors were unable to tell if the cardiac arrest had caused any lasting damage.

Nicci and William’s father Sebastian kept an anxious bedside vigil for five days, unsure if their son would ever wake up.

“Our usually boisterous boy looked so tiny with all the tubes and monitors attached to him,” Sebastian said.

On the fifth day, William was brought out of the coma and, to his parents’ enormous relief, woke up completely a few hours later.

“When his first response was, ‘I want to give mummy a cuddle,’ we knew immediately that our boy was back,” Nicci said.

Doctors discovered that William’s heart problems were the result of a genetic condition.

He underwent surgery the following week to have a tiny defibrillator the size of a matchbox implanted under his ribcage.

If his heart stops again, the device would shock it back into action automatically.

“It’s reassuring to know that if we’re ever out camping or on an airplane, we won’t have to worry about getting to hospital in time,” Nicci said.

The operation went smoothly and William returned home with his family just five weeks after his initial cardiac arrest.

He is back to his usual playful self, and Nicci and Sebastian are thrilled.

“The staff at the Sydney Children’s Hospital have truly shown William the greatest expertise and the best care,” Sebastian said.

William is one of the faces of the Sydney Children’s Hospital’s Gold Week telethon, which will take place on Monday, June 11, to raise money for the hospital. Make your donation now!

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Mum defends her toddler’s monthly spray tans

Toddler Savanna Jackson get monthly spray tans

Savanna Jackson might be just three years old, but that doesn’t stop her mother spending $4600 every month on fake tans and makeup.

Lauren Jackson has defended her daughter’s extravagant beauty regime, insisting her monthly spray tans ensure the other pageant contestants don’t have an “unfair advantage”.

“I just want her to have the best possible opportunity to win. Besides, Savanna loves it,” Lauren said. “I’m so proud of my tanned toddler.”

Lauren says the fake tanning is “100 percent safe” but won’t let Savanna’s face been sprayed in case she swallows any chemicals.

Lauren entered Savanna in her first beauty pageant when she was 10 months old.

Lauren, 26, and Savanna, three, are from Michigan in the US.

Savanna has all her makeup applied by a professional makeup artist.

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Hero dog protects abandoned baby overnight

Hero dog protects abandoned baby overnight

A loyal farm dog has been hailed as a hero after he was found guarding an abandoned baby boy in Ghana, West Africa.

The dog was discovered nuzzled against the two-week old child who was left wrapped in blankets under a bridge in the town of Winkongo after it was left there by its mother.

The unlikely pair were found by a search party which had set out to find the dog after it went missing the night before.

Madam Azure, the district director of health, told local media outlet the Ghana News Agency that the child’s umbilical cord was still attached and had become infected, but that the child was otherwise in good health.

Local officials said it was unknown why the child had been abandoned, but that it had been placed in the care of the local health directorate until a new home could be found.

Your say: Is your dog a hero? Share your stories in the comments box below.

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How to make constructive complaints while shopping

How to makeconstructive complaints while shopping

Although it’s relatively simple to check your rights as a consumer — see www.accc.gov.au — it can be difficult to stand your ground in the face of poor or even rude customer service and complain constructively.

If goods are faulty it’s the supplier’s responsibility to refund or replace and if told you have to claim a refund from the manufacturer, or claim under the manufacturer’s guarantee, this is simply untrue.

Consumer’s rights are against the supplier not the manufacturer and guarantees give additional rights which shoppers can choose to use.

If goods you buy are faulty, incorrectly described or not fit for purpose you may be entitled to your money back, an exchange or a repair and that applies whether bought in a standard transaction or a sale.

If purchases don’t meet their specification, such as clothing that comes apart after only one wearing, you may be entitled to a refund or a replacement.

If a damaged item needs repairing, the repair should be carried out within a reasonable period of time and without causing you significant inconvenience.

An item of clothing which ruins any of your other belongings — for example the colour runs due to a fault and discolours other clothes — means you may also be entitled to compensation over and above the price of the item.

If you lose your receipts, your rights still apply, although it makes life easier if you do retain all receipts. Alternative proof of purchase such as a credit card bill, tax invoice or lay by agreement is sufficient proof of purchase.

It isn’t our fault — go back to the manufacturer.

Not true — you bought the goods from the supplier who is liable for any breaches of contract.

You only have rights for 30 days after purchase.

Not true — you might be too late to get all your money back, but the supplier will still be liable if the goods are faulty and a standard guarantee usually covers a year.

You must produce your receipt.

Not true — a bank statement, credit card slip etc which shows proof of purchase is sufficient.

No refunds can be given on sale items.

That depends — you won’t be entitled to anything if you were advised of any faults before purchase, or if the fault should have been obvious to you. Otherwise, normal rights apply.

We don’t give refunds — you must accept a credit note.

If you have changed your mind, the shop doesn’t have to do anything. But if the goods are faulty, incorrectly described or not fit for normal purpose, you are entitled to your money back and don’t have to take a credit note. If a shop has a sign up with this sort of statement, it might be breaking the law — report it to your local consumer protection agency.

Last year, I had a set to with an expensive kids’ shoe shop over my son’s school shoes which he’d worn for all of four weeks when the stitching started coming undone. I’d returned the shoes with the receipt and politely asked for a replacement, to be met by a truly horrible manageress who could not have been ruder.

She said he must have been playing sport in them, queried the date on the receipt and snorted when I said they were immaculate apart from the stitching which wouldn’t have been the case if he’d been playing sport in them. She finally conceded there was a problem but told me I’d have to send them direct to the manufacturer myself and refused to budge. I phoned the head office and they told me to go back and quote the name of the person in charge in head office and she grudgingly replaced them.

Just two weeks later my youngest daughter returned from school and I found two huge holes in each sole of her shoes which had been bought at the same time as my son’s so with heart sinking I made my way back to the shop. The manageress must have been told off by the head office as she could not have been more obsequious or apologetic and fell over herself to offer me my money back or a replacement.

A week later my daughter’s friend came home from school with her and said ‘ A funny thing happened to my shoes. They had big holes in them and mummy was going to get more for me but when I came home from school one day the holes had gone.’ They had identical shoes and changing back after sport had put on the wrong ones. And no, I’ve never gone back to the shop….

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VIDEO: Babies taste lemons for the first time

VIDEO: Babies taste lemons for the first time

Every parent does it. Even though they know their child won’t like it, they still do it.

Giving a baby a lemon to taste for the first time teaches them the difference between sweet and sour, but let’s be honest, it is also partly for parents’ own enjoyment.

Kids pull some pretty cute faces when they try one and this video says it all. Take a look at this adorable video of children tasting lemons for the first time.

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Garfield could be world’s largest cat

Garfield could be world's largest cat weighing 18 kilos!

Weighing more than 18 kilos, this cat named Garfield might just be the fattest in the world. But while he may look cute and cuddly US pet experts say his size is cause for concern.

Garfield was dropped off at North Shore Animal League America in Port Washington, New York by the neighbours of his elderly owner who passed away and staff couldn’t believe his size.

“This is the fattest cat I have ever seen,” North Shore veterinarian Gerard Leheney told the New York Post. “My first reaction was astonishment.”

The shelter plans to locate the owner’s family before putting Garfield up for adoption, but first, he has been placed on a strict diet.

All dry food has been eliminated from Garfield’s new low-calorie diet and vets at the centre hope he can lose around a kilo per month.

Vice president at North Shore Animal League America Mark Verdino said Garfield, like all obese pets, needs to lose weight to live a longer and healthier life.

“People often think that an obese animal is not in physical danger, but nothing could be further from the truth,” he said.

“Just like with humans, too much weight can cause serious health problems. It leads to diabetes, heart disease, joint, bone and ligament damage, high blood pressure, intolerance to heat and more.”

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First Pippa, now Kate! Flirty Harry strikes again

There’s something about the balcony at Buckingham Palace that brings out Prince Harry’s flirtatious side.

The 27-year-old royal turned on the charm for his sister-in-law Catherine, the Duchess of Cambridge, during yesterday’s Diamond Jubilee celebrations.

Harry and Catherine giggled throughout the balcony appearance while Prince William remained sombre and serious, perhaps contemplating the fact that he will one day be king.

It’s not the first time Harry’s flirty behaviour on the famous balcony has caused a stir – his behaviour towards royal bridesmaid Pippa Middleton made headlines around the world last year.

William was sombre and serious during the balcony appearance.

Harry and Catherine, on the other hand, couldn’t stop smiling.

Harry had Catherine in stitches of laughter.

Harry leans in close to whisper something in Catherine’s ear.

Perhaps William was reflecting on his future role as king.

Harry was very tactile with his sister-in-law.

Catherine wore a stunning blush lace Alexander McQueen dress.

Harry and Catherine.

William joined the conversation at times.

The queen, William, Catherine and Harry.

Harry and Catherine.

Harry’s infamous flirting with Catherine’s sister Pippa on the royal wedding day.

Rumours Harry and Pippa were involved quickly spread.

Best man Harry and royal bridesmaid Pippa.

Harry turns his attentions on the Countess of Wessex in 2011.

Princess Eugenie didn’t seem to find Harry amusing in 2005.

Harry chats to Princess Michael of Kent in 2000.

Italian

A baby Harry charms Lady Rose Windsor from Princess Diana’s arms in 1988.

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You’re not getting enough vitamin D

You're not getting enough vitamin D

The benefits of vitamin D go beyond its role in healthy bones and the scary truth is that many Australians simply don’t get enough, writes dietitian Karen Inge.

Wearing sunscreen right now? Good for you. You’re effectively reducing your chances of developing skin cancer and preventing fine lines and wrinkles.

And now for the bad news. That sunscreen could be risking your health in other ways.

Related: Get supplement savvy

You see, by diligently applying the SPF, you’re decreasing your body’s ability to make vitamin D. And that’s a problem, possibly even a deadly one.

Read on to discover why vitamin D matters as much as it does, whether you’re at risk and what to do about it.

Vitamin D health benefits

Vitamin D is a fat-soluble vitamin that has been widely recognised for its role in maintaining bone and muscle strength.

It is not a nutrient in the usual sense since, under normal conditions, it is supplied mainly by the skin.

In addition, its physiological actions are attributable to the active metabolite, 1,25-dihydroxyvitamin D, which because it is synthesised in the kidneys and acts elsewhere is often called a hormone.

Vitamin D is essential for enhancing calcium absorption in the gut and regulating calcium and phosphate concentrations in the blood to promote normal bone mineralisation.

If there is mild to moderate vitamin D deficiency, calcium absorption is impaired, which can result in decreased bone density and muscle strength, and an increase in fractures.

In fact, many studies have linked vitamin D deficiency with falls and fractures in both women and older men. If the deficiency is severe, osteomalacia (soft bones) can develop in adults as well as rickets (bone malformations such as bowed legs and knocked knees) in children.

Yet there’s more – so much more. Much of the research has been led by Dr Michael Holick, Professor of Medicine, Physiology and Biophysics at the Boston University Medical Centre. He has studied vitamin D for more than 30 years, published widely in peer-reviewed journals and has recently published a book, The Vitamin D Solution.

He, along with many other researchers, including Associate Professor Rebecca Mason from the University of Sydney, agree that there is accumulating evidence that adequate vitamin D also protects against certain cancers, particularly breast, prostate and colon cancer, helps to prevent auto-immune diseases, such as multiple sclerosis, Type 1 diabetes, inflammatory bowel disease and rheumatoid arthritis, plus decreases the risk of high blood pressure, Type 2 diabetes, susceptibility to infection as well as reducing overall mortality including cardiovascular mortality.

How much do we need?

The Recommended Dietary Intake (RDI) of vitamin D is 5-15 micrograms per day (200-600IU). The amount varies depending on age:

Children of all ages – 5mcg (200IU)

Males and females 14 -50 yrs – 5mcg (200IU)

Males and females 51-70 yrs – 10mcg (400IU)

Males and females >70 yrs – 15mcg (600IU)

According to Professor Caryl Nowson, another Australian vitamin D researcher, our average dietary intake of vitamin D is low, varying from 1.2-2.6 micrograms per day, which is less than 50 per cent of the RDI.

Where do we get it?

The main source of vitamin D is from sun exposure. The UV rays convert pre-vitamin D in the skin to vitamin D3. This conversion is reduced by 95 per cent when we use sunscreen and reduced by 70 per cent as the skin ages. The challenge exists to balance the need for sun exposure against the risk of skin cancer.

The current advice is to expose your skin to the sun safely, say 15 per cent of the body (face, arms and hands) for six to 10 minutes from October to April, at non-peak UV times, and 15 to 30 minutes from May to September, at non-peak UV times.

In other words, in summer, walk for a few minutes in the sun at morning and afternoon tea times most days with bare arms. In winter, walk in the sun for 20 minutes in Sydney, 30 minutes in Melbourne and seven minutes in Cairns at lunchtime most days with your sleeves rolled up.

We also obtain vitamin D through our diet, but very few foods contain significant amounts. Rich sources of vitamin D include oily fish such as trout, herring, sardines and mackerel. Other sources include egg yolks, cheese, liver, margarine and fortified dairy products.

Mushrooms contain an inactive form of vitamin D and new developments in the mushroom industry will soon provide us with mushrooms which have been zapped with UV light, making them a great source of vitamin D, especially for vegetarians.

Adding more D in your diet

  • Use a vitamin D-fortified milk on your breakfast cereal and in tea and coffee.

  • Have sardines on toast spread with a vitamin D-enriched margarine.

  • Enjoy a salad nicoise for lunch, using smoked trout instead of tuna for extra vitamin D.

  • Try pickled herring with finely chopped onion on sourdough rye bread for a quick and tasty lunch.

  • Add a dollop of vitamin D-enriched yogurt on your fruit salad for a snack.

  • Enjoy a cheese omelette made with a splash of vitamin D-enriched milk.

  • Try eating alfresco (in the sun) to help boost your vitamin D levels.

What about supplements?

Supplements can be useful when sun exposure is not recommended or not practical due to illness, or cultural or religious beliefs. For all those people, the recommended supplement dosage is at least 1000IU of vitamin D3 per day. The best advice is to consult your health practitioner and have your individual needs assessed.

Who is at risk?

Groups most vulnerable to developing vitamin D deficiency are those who have little exposure to the sun.

These may be people who work long hours indoors, those who smother themselves in sunscreen and the frail elderly, particularly those in nursing homes or hospitals.

Others at risk are those who, for religious or cultural reasons, cover up and do not expose their skin to the sun and people with dark skin because melanin reduces the amount of UV radiation getting through the skin.

The children of mothers who are mildly vitamin D deficient are doubly at risk. Breast milk is a poor source of vitamin D – even more so if the mother has poor vitamin D status – and if the child is wrapped up constantly and kept out of the sun.

Related: Thirteen unusual uses for lemons

If you have some form of malabsorption, such as coeliac disease, cystic fibrosis or inflammatory bowel disease, it may be worth checking your vitamin D levels. New research is suggesting that obesity may also be a risk factor for low vitamin D levels as the vitamin is fat soluble and becomes trapped in fat tissue and is unable to perform its functions.

Your say: Are you worried about your vitamin D levels?

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